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To Increase Awareness and Understanding of Dysautonomia and Other Invisible Chronic Illnesses
Invisible Zebra
Jennifer Cook
About Me
- AJW4055~
- I am a 25 year old female trying to bring awareness and understanding to invisible chronic illnesses. I am currently on medical leave from grad school and unlikely to return to previous program due to dysautonomia. I have likely had Dysautonomia and related conditions all my life, but they worsened while I was in grad school. I have been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) which is a type of Dysautonomia. Other diagnoses include Small Fiber Neuropathy (sensory and autonomic), Essential Tremor, Ehlers-Danlos Syndrome Type III: Hypermobility Type, Migraines etc... (it is a long list).
Some of the things I find helpful for my symptoms...
* Meds- SSRI's, SNRI's, beta blockers, Neurontin, Primidone (for tremor), Prilosec
* Vitamins
* Magnesium
* Increased salt in diet
* Increased fluid intake
* Decreased carb intake
* Countermanuevers
* Fidgeting
* SLEEP!
* Electrolyte water/Electromix drink packets
* A little caffeine
* Vitamins
* Magnesium
* Increased salt in diet
* Increased fluid intake
* Decreased carb intake
* Countermanuevers
* Fidgeting
* SLEEP!
* Electrolyte water/Electromix drink packets
* A little caffeine
Things that make symptoms worse...
* HEAT
* humidity
* dehydration
* lack of sleep
* not eating properly (small meals, more often, low carb)
* stress
* hormone fluxuations
* exertion (exercise intolerance)
* standing still or other positions that allow blood to pool
* rapid position changes or bending down
* certain foods (person dependent)
* climbing stairs
* using arms overhead (quickly fatigue and rapid BP increase)
* lifting heavy objects (increases HR etc)
* humidity
* dehydration
* lack of sleep
* not eating properly (small meals, more often, low carb)
* stress
* hormone fluxuations
* exertion (exercise intolerance)
* standing still or other positions that allow blood to pool
* rapid position changes or bending down
* certain foods (person dependent)
* climbing stairs
* using arms overhead (quickly fatigue and rapid BP increase)
* lifting heavy objects (increases HR etc)
Dysautonomia Links
National Dysautonomia Research Foundation
http://www.ndrf.org/
DINET: Dysautonomia Information Network
http://www.dinet.org/
Wikipedia
http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome
NYMC's Website
http://www.nymc.edu/fhp/centers/syncope/pots.htm
Mayo Podcast
http://podcasts.mayoclinic.org/2008/04/23/postural-orthostatic-tachycardia-syndrome-pots/
http://www.ndrf.org/
DINET: Dysautonomia Information Network
http://www.dinet.org/
Wikipedia
http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome
NYMC's Website
http://www.nymc.edu/fhp/centers/syncope/pots.htm
Mayo Podcast
http://podcasts.mayoclinic.org/2008/04/23/postural-orthostatic-tachycardia-syndrome-pots/
Links to Articles on Dysautonomia
What is Dysautonomia?
http://www.associatedcontent.com/article/1166387/what_is_dysautonomia.html?cat=5
Symptoms, Causes, and How to Treat Dysautonomia
http://www.associatedcontent.com/article/1166419/symptoms_causes_and_how_to_treat_dysautonomia.html?cat=5
Dysautonomia: Things That Help and Those That Don't
http://www.associatedcontent.com/article/1166455/dysautonomia_things_that_help_and_those.html?cat=70
POTS: Prognosis and Lifestyle
http://www.associatedcontent.com/article/1168202/dysautonomia.html?cat=70
Shopping with Dysautonomia
http://www.associatedcontent.com/article/1271969/shopping_with_dysautonomia.html?cat=70
http://www.associatedcontent.com/article/1166387/what_is_dysautonomia.html?cat=5
Symptoms, Causes, and How to Treat Dysautonomia
http://www.associatedcontent.com/article/1166419/symptoms_causes_and_how_to_treat_dysautonomia.html?cat=5
Dysautonomia: Things That Help and Those That Don't
http://www.associatedcontent.com/article/1166455/dysautonomia_things_that_help_and_those.html?cat=70
POTS: Prognosis and Lifestyle
http://www.associatedcontent.com/article/1168202/dysautonomia.html?cat=70
Shopping with Dysautonomia
http://www.associatedcontent.com/article/1271969/shopping_with_dysautonomia.html?cat=70
My Articles on Associated Content
Wild thing lurking for food under the kitchen table.
She's black and white, but not a zebra!
Mini GP
Not a zebra... but, she is cute!!!
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- Spring Cleaning Continues...
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- The zebras are annoying me!!!
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