To Increase Awareness and Understanding of Dysautonomia and Other Invisible Chronic Illnesses
Sunday, April 26, 2009
The Spoon Theory
Here is a link to The Spoon Theory. It is a good story/description of invisible chronic illness. It's purpose is to try to help others understand what it is like to live with an invisible chronic illness on a daily basis.
I am a 25 year old female trying to bring awareness and understanding to invisible chronic illnesses. I am currently on medical leave from grad school and unlikely to return to previous program due to dysautonomia. I have likely had Dysautonomia and related conditions all my life, but they worsened while I was in grad school. I have been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) which is a type of Dysautonomia. Other diagnoses include Small Fiber Neuropathy (sensory and autonomic), Essential Tremor, Ehlers-Danlos Syndrome Type III: Hypermobility Type, Migraines etc... (it is a long list).
* HEAT * humidity * dehydration * lack of sleep * not eating properly (small meals, more often, low carb) * stress * hormone fluxuations * exertion (exercise intolerance) * standing still or other positions that allow blood to pool * rapid position changes or bending down * certain foods (person dependent) * climbing stairs * using arms overhead (quickly fatigue and rapid BP increase) * lifting heavy objects (increases HR etc)
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